Diary of an SAH Stroke Survivor How people with a disability are demonised by the Tory Party.
Posted by labourblogger on January 11, 2013
Letter to the Daily Mirror by Leon Carter (published with permission)
I write to you today with regards to the grossly unfair Work Capability Assessment (WCA) undertaken by ATOS Healthcare on behalf of the Secretary of State for Works and Pensions (DWP), as you may well know their is a Judicial Review of the WCA bring brought by the Mental Health Resistance Network (MHRN) on behalf of two anonymous mental health claimants I am told that it will be covered by press and media but I hope this is the case for you given your good coverage of this matter.
The result of this Judicial Review will have an impact of my own claim for the following reasons:
In April of 1990 I had an SAH Stroke it was so bad only surgery to clip the bleed would work and thus I had a deep invasive craniotomy to clip the bleed from the middle cerebral artery this resulted in causing a stroke and 2 mths of induced coma to aid healing indeed this is testament to our great NHS that our Government is intent of destroying.
At this point I was left disabled with right sided spasticity through no fault of my own I may add as I was born with this weak blood vessel indeed a ticking timebomb waiting to happen and thus my life from that point was going to be a hard uphill struggle because back then post stroke care was very limited indeed since then stroke care had improved greatly until the con/dems took office and we are now seeing services cut and thus a return to days of old.
Now I do not regret this tragic event that happened in my life in fact I am thankful because it has made me open my eyes and see things our politicians do not and so I find myself having Humanity, Compassion and more of an Understanding than those born with a silver spoon in their mouths.
Now I did and still do have morals and did not want to be a stay at home shirker with my curtains closed as Ian Duncan Smith puts it but wanted to get myself fit as can be so I could return to work after all I was only 27 then this I managed to archive 18 months later and it is where I stayed until 2007.
During this time although I had an entitlement to Disability Living Allowance, but I never claimed a penny why should I after all I had morals and thus because I was earning a good wage I did not need the extra money and rightly or wrongly thought their was others in more need than me.
However because I did my part for the Government in saving them cost and paying my taxes and national insurance I did claim in September 2007 on getting made redundant due to the financial bubble that was the real reason for this mess we are in now, although what I got was not a fair refection of my disabilities, but was happy I got the middle rate of the care component which helped along with the incapacity benefit so did not add cost by appealing this decision.
Now roll forward to the middle of 2012 and I found my self having to gather evidence and filling forms to claim ESA despite the DWP already having this information due to my DLA Claim indeed my mental and physical disability’s will not get any better not after living with it for almost 23 years.
I wrongly thought I would be put in the support group given my issues with working memory, executive functioning and motivation which is all clinical due to damaged frontal and temporal lobes and not laziness but no I was put in the wrag group without even an assessment so they only had documentary evidence to go on and as I am not all that good at putting things across on paper I found my self in a battle again.
My ESA form was back late due to my health conditions and I was first refused ESA and had to get my MP involved to reinstate my claim but again I was late on my appeal for the same reason and thus stuck in the wrong wrag group until the end of this year when my claim will end, 30 days is clearly not enough time for citizens like me and as the judge will draw on at the JR really they should gather the evidence themselves.
I am still not a scrounger as they put it because although I cannot get full time work due to the current economic climate and my disabilities I work voluntary in the community and about to take a role with the Stroke Association plus also caring for our disabled elderly mum at home who is 89 years old.
I hope you can print some or all of this in your paper because reality needs to be told, indeed for we have done and do we deserve a medal and certainly not the daily attacks we have dished on us.
Subarachnoid Hemorrhage (SAH) :